I can only imagine how frustrated you must be by this.
Try not to worry too much (easier said than done) and keep your chin up. Maybe there will be some good news in 4 months time!
Oh and keep the videocamera handy. The more I think about it the more bizarre that request becomes. Do they seriously expect a parent who's child is having a seizure to run off and get a video camera? Don't think anyone would blame you if you happened to miss recording that event.