Fingers crossed

IanHoughton · 12-07-2007, 00:01

We're taking our youngest daughter Tiffany (18 months) to the hospital tomorrow to find out the results from the EEG scan she had a month ago. She's had 3 fit's in the last 6 months, the first being the worst where she stopped breathing in front of me and we had top call out an ambulance. That has got to be the worst day of my life so far. After a stop in the hospital and numerous tests, ECG and then the EEG we're hoping that they'll put it down to the fact she can't control her body temperature when she's ill.

I wish I'd taken a camera though to the EEG, the notes before hand said she needed to sit still for 20 minutes, anyone who knows Tiffany would know that's not possible !! Anyway she sat still while the operator placed about 20 sticky pads to her head and attached electrodes / wires to them. She looked like something off Doctor Who.

Anyway, thought I'd share what's going on, it certainly makes you think what's important in life. I just hope tomorrow is all clear.

CathieT · 12-07-2007, 00:33

My thoughts are with you Ian .... my stepdaughter was prone to febrile convulsions when she was little ... and now she's fine (I use that word very loosely - she's now 16 and I don't know if any teenager can be considered normal???!!!)

Modern diagnostic medicine is an amazing thing and I'm sure everything will turn out okay.

Give your little Dalek a hug for me ....

Cathie

cpd23 · 12-07-2007, 00:41

IanHoughton
My prayers are with you and Tiffany. We went through a similar issue with my oldest son about 15 yrs ago. The only advise I got back then that really helped was keep your family close to you and take it one day at a time.
Best of luck

P-E · 12-07-2007, 07:04

All the best Ian and I hope all goes well.

**Dabhand16** · 12-07-2007, 07:06

Hang in there Ian. Every one of us who is a parent knows exactly what you are going through. I do not profess to be an expert, but kids often go through phases of all sorts of nasty stuff and can just grow out of it, sometimes they need a little help.

Hope all goes well.

**Angela** · 12-07-2007, 11:19

Ian, keeping you all in my thoughts today. I hope you get some good news.

Victoria · 12-07-2007, 11:45

Hey Ian,

I'm sorry to hear about your little one and I certainly hope you get the good news you deserve.

Keep us posted.

Stormbringer · 12-07-2007, 13:14

Ian
Best wishes to you and yours. I sincerely hope that you get the best of news possible.

Stormbringer

**Sonsey** · 12-07-2007, 14:40

I can only echo all the comments above Ian, I hope you get good news tomorrow and everything goes well for her in the future

**Markulous** · 12-07-2007, 15:49

Looking forward to you reporting all is well!

Fingers X'd for you, Tiffany!

sawdust · 12-07-2007, 18:18

All the best for you and your family Ian I'm sure all will be ok I'm away in cornwall for the week but will be thinking of you Give Tiffany a hug from me.
All the best Alan

bob · 12-07-2007, 21:38

our hopes and thoughts are with you and your family
hope all goes well

IanHoughton · 12-07-2007, 22:49

Well what a complete waste of time

.

We turned up for our appointment on time and got called in to see the consultant. This guy had no idea of the previous issues apart from the notes in front of him. He then spent the next 30 mins asking the most basic questions about Tiff's health. The results of the EEG scan over 4 weeks ago had not been returned. After waiting over an hour the consultant came back with the EEG technicians results, no abnormalities found. We still have not seen the results that should have been analysed by the EEG consultant

The finale was the consultant giving us another appointment for 4 months time, and then saying if she has another seizure we should try and video it to help them diagnose.... as if we would start looking for a video camera at that time.

But thanks for all your kind comments, they are much appreciated

Anyway we're off to Devon on Saturday, so we can put this behind us, and hopefully I'll have some more pictures to post on Pixalo.

**Dabhand16** · 12-07-2007, 23:06

Oh Ian - what an anti-climax. Why is it that I'm not totally surprised with this news? my own experiences with the NHS are that individuals show such total commitment, but are let down by the system.

The best thing seems to be the report of no abnormalities, so all you can do is to carry on, be vigilant and have hope.

You know our thoughts are with you. Hope you have a really good holiday.

Victoria · 12-07-2007, 23:37

I can only imagine how frustrated you must be by this.

Try not to worry too much (easier said than done) and keep your chin up. Maybe there will be some good news in 4 months time!

Oh and keep the videocamera handy. The more I think about it the more bizarre that request becomes. Do they seriously expect a parent who's child is having a seizure to run off and get a video camera? Don't think anyone would blame you if you happened to miss recording that event.

12-07-2007, 00:01	#1 (permalink)
IanHoughton Forum Regular Join Date: Sep 2006 Location: Hinckley, Leicestershire, UK Posts: 551	Fingers crossed We're taking our youngest daughter Tiffany (18 months) to the hospital tomorrow to find out the results from the EEG scan she had a month ago. She's had 3 fit's in the last 6 months, the first being the worst where she stopped breathing in front of me and we had top call out an ambulance. That has got to be the worst day of my life so far. After a stop in the hospital and numerous tests, ECG and then the EEG we're hoping that they'll put it down to the fact she can't control her body temperature when she's ill. I wish I'd taken a camera though to the EEG, the notes before hand said she needed to sit still for 20 minutes, anyone who knows Tiffany would know that's not possible !! Anyway she sat still while the operator placed about 20 sticky pads to her head and attached electrodes / wires to them. She looked like something off Doctor Who. Anyway, thought I'd share what's going on, it certainly makes you think what's important in life. I just hope tomorrow is all clear. __________________ Ian Houghton http://www.ianhoughton.co.uk - My homepage http://www.redmorello.com - Creative website design and hosting

12-07-2007, 00:33	#2 (permalink)
CathieT Forum Regular Join Date: Mar 2007 Location: Adelaide, South Australia Posts: 615	Re: Fingers crossed My thoughts are with you Ian .... my stepdaughter was prone to febrile convulsions when she was little ... and now she's fine (I use that word very loosely - she's now 16 and I don't know if any teenager can be considered normal???!!!) Modern diagnostic medicine is an amazing thing and I'm sure everything will turn out okay. Give your little Dalek a hug for me .... Cathie

12-07-2007, 00:41	#3 (permalink)
cpd23 Getting Comfy Join Date: May 2007 Posts: 186	Re: Fingers crossed IanHoughton My prayers are with you and Tiffany. We went through a similar issue with my oldest son about 15 yrs ago. The only advise I got back then that really helped was keep your family close to you and take it one day at a time. Best of luck

12-07-2007, 07:04	#4 (permalink)
P-E Loves the place Join Date: Aug 2005 Location: Sheffield, S.Yorkshire UK Posts: 7,496	Re: Fingers crossed All the best Ian and I hope all goes well.

12-07-2007, 07:06	#5 (permalink)
Dabhand16 Pixalo Crew Join Date: Jun 2006 Location: Dunstable Bedfordshire UK Posts: 8,918	Re: Fingers crossed Hang in there Ian. Every one of us who is a parent knows exactly what you are going through. I do not profess to be an expert, but kids often go through phases of all sorts of nasty stuff and can just grow out of it, sometimes they need a little help. Hope all goes well.

12-07-2007, 11:19	#6 (permalink)
Angela Pixalo Crew Join Date: Aug 2006 Location: Wimbledon Posts: 5,809	Re: Fingers crossed Ian, keeping you all in my thoughts today. I hope you get some good news.

12-07-2007, 11:45	#7 (permalink)
Victoria Getting Comfy Join Date: Jan 2007 Location: South Australia Posts: 204	Re: Fingers crossed Hey Ian, I'm sorry to hear about your little one and I certainly hope you get the good news you deserve. Keep us posted.

12-07-2007, 13:14	#8 (permalink)
Stormbringer Quite Chatty Join Date: Jun 2007 Location: Crewe, Cheshire, England Posts: 77	Re: Fingers crossed Ian Best wishes to you and yours. I sincerely hope that you get the best of news possible. Stormbringer

12-07-2007, 14:40	#9 (permalink)
Sonsey Pixalo Crew Join Date: Oct 2005 Location: N. Ireland Posts: 7,239	Re: Fingers crossed I can only echo all the comments above Ian, I hope you get good news tomorrow and everything goes well for her in the future

12-07-2007, 15:49	#10 (permalink)
Markulous Pixalo Crew Join Date: Jul 2006 Location: Peak District Posts: 9,691	Re: Fingers crossed Looking forward to you reporting all is well! Fingers X'd for you, Tiffany!

12-07-2007, 18:18	#11 (permalink)
sawdust Forum Regular Join Date: Dec 2006 Location: Ashby de la zouch Leicestershire Posts: 700	Re: Fingers crossed All the best for you and your family Ian I'm sure all will be ok I'm away in cornwall for the week but will be thinking of you Give Tiffany a hug from me. All the best Alan

12-07-2007, 21:38	#12 (permalink)
bob Been here a while Join Date: Sep 2006 Location: leominster,herefordshire Posts: 312	Re: Fingers crossed our hopes and thoughts are with you and your family hope all goes well

12-07-2007, 22:49	#13 (permalink)
IanHoughton Forum Regular Join Date: Sep 2006 Location: Hinckley, Leicestershire, UK Posts: 551	Re: Fingers crossed Well what a complete waste of time . We turned up for our appointment on time and got called in to see the consultant. This guy had no idea of the previous issues apart from the notes in front of him. He then spent the next 30 mins asking the most basic questions about Tiff's health. The results of the EEG scan over 4 weeks ago had not been returned. After waiting over an hour the consultant came back with the EEG technicians results, no abnormalities found. We still have not seen the results that should have been analysed by the EEG consultant The finale was the consultant giving us another appointment for 4 months time, and then saying if she has another seizure we should try and video it to help them diagnose.... as if we would start looking for a video camera at that time. But thanks for all your kind comments, they are much appreciated Anyway we're off to Devon on Saturday, so we can put this behind us, and hopefully I'll have some more pictures to post on Pixalo.

12-07-2007, 23:06	#14 (permalink)
Dabhand16 Pixalo Crew Join Date: Jun 2006 Location: Dunstable Bedfordshire UK Posts: 8,918	Re: Fingers crossed Oh Ian - what an anti-climax. Why is it that I'm not totally surprised with this news? my own experiences with the NHS are that individuals show such total commitment, but are let down by the system. The best thing seems to be the report of no abnormalities, so all you can do is to carry on, be vigilant and have hope. You know our thoughts are with you. Hope you have a really good holiday.

12-07-2007, 23:37	#15 (permalink)
Victoria Getting Comfy Join Date: Jan 2007 Location: South Australia Posts: 204	Re: Fingers crossed I can only imagine how frustrated you must be by this. Try not to worry too much (easier said than done) and keep your chin up. Maybe there will be some good news in 4 months time! Oh and keep the videocamera handy. The more I think about it the more bizarre that request becomes. Do they seriously expect a parent who's child is having a seizure to run off and get a video camera? Don't think anyone would blame you if you happened to miss recording that event.

13-07-2007, 08:12	#16 (permalink)
Stormbringer Quite Chatty Join Date: Jun 2007 Location: Crewe, Cheshire, England Posts: 77